Wednesday, January 30, 2013

When words hurt...

We've all seen the lists of what not to say to infertiles (yes spell check after all these times of typing that word I am very sure I don't mean interflies!).  and I find myself even before we were diagnosed wondering how people could even think to say some of these things to people.  Really?  I chalk it up to again seeing several women I love going through the treatments and working in women's health that I know better for the most part.  While I won't repeat the lists again that are copied over and over and basically the same thing  here is a list of things (in no particular order).  I have recently been told and hurt by (and not calling anyone out if you realize it is you, just setting an example). I truly get that almost none of these people meant any harm and were trying to help, but still. 

1) Are you sure it's not possible?  This happens quite a bit actually.  Yes I'm very sure.  Again it's like saying are you sure it's cancer?  Technically it is possible as long as we have sex and I have a uterus, but reality of sustaining a pregnancy even if it implanted is not probable.  Infertility is often misconstrued as being about the ability to get pregnant but it actually goes into being able to carry a child full term.  There's a fact for ya!

2)  Perhaps God gave you this health condition for a reason.  I've found myself saying over and over that I feel like God has plans for me and I could be the best foster/adoptive parent ever but seriously?  Hey God thought you should be a lefty so he gave you that horrible accident that cost you your right arm.  Sounds pretty vicious when you put it that way right? 

3) Why can't you just be happy for others?  Unless I've said God awful hateful words such as you don't deserve this baby or I hope you miscarry so you can know what miserable means (as in I'd never say those words in a million years!) never assume you know if I am happy for you or others or not.  I am happy for you.  Sometimes our joy can bring others pain. People who ask this are often the reason I'm not happy though!

4) I/My (random family member)/my neighbor's sister's friend had a miscarriage/took (amount) of years/ was on bed rest and I didn't feel/act/get depressed or post annoying shit like you.  Good for you and for them.  People grieve differently.  People like you are the reason I share the links on etiquette and could use a few more lessons on far more than infertility etiquette.  Most of you who offered these words have had kids too so it's a slightly different feelings when ITS NEVER GOING TO HAPPEN.  Look up primary infertility vs secondary infertility. Both hurt but still different. 

5) Have you tried (insert random form of health/fertility treatment/supplement)?  Most of the ones recommended on message boards promote estrogen growth.  That is the last thing I need but indeed does help several other ladies succeed.  I'm a pee on a stick pro and can tell you about every phase of the cervix position and it's glorious mucous.  If it's an option for me that would work with our situation I've probably tried it or ran it past the experts for opinion.  I'm about to technically be homeless and floating between 2 moms and houses in 2 cities with my husband and school and work to deal with on top of building a new home.  Anything that requires specific diet or timing just isn't fitting right now no matter how much I'd love to have that miracle happen between now and June. 

6) How about adoption? Can't you just adopt?  Yes we can and probably will.  It all goes back to that point above where we will be homeless.  A lot of places charge 700+ dollars to update a home study so we've said from the beginning we'd begin that journey once we were settled into our new home.  Why waste the money we'll need to afford caring for a new little one or ones?  Besides floating between homes and cities is hard enough with pets I can't imagine denying my husband the bonding with a child or anyone giving us a serious look applying in our current situation.  Trust me I've read my information and done my research. I read tons of books and journals all last summer and I am ready to make that step as much as you are to see us succeed. 

7) So and so was told it'd never happen and it did for them.  That's great for them and I'm super happy they were blessed with a miracle, but I'm not just facing one issue, but several against me.  It doesn't mean I've given up hope or being negative because I will always hang on to hope, but I also don't want to get lost in a daydream and miss out on the rest of my life.  Knowing that I would have extremely high risks of losing a baby and myself in the second trimester from both of the female issues is hard to stomach.  Literally my uterus could rupture from the thin spots of lining as they stretch from having the endo ablated.  The septum receives no blood flow and my baby would die from lack of blood if it chose to implant anywhere on that part of my uterus.  Before I even knew about those there was the issue of my back.  I have 2 full length Herrington rods with crossed fixtures and a spinal infusion at the bottom.  Most of a normal pregnancy could be spent on bed rest.  We have big babies and twins galore in this family so normal size is out the window.  Knowing I could crush my spine just carrying in the 3rd trimester and not be able to have any form of spinal is a big deal.  Depending on placement they can try but when you have the surgery I did those holes where they try could not heal and basically leak spinal fluid or cause more arthritis from lack of healing.  I couldn't do a vaginal delivery or even a regular c-section. I'd have to be under anesthesia and Shane therefore couldn't even be in the OR to be with our child while I'm out.  This was something he was very aware of before we got married on top of the risk that I may not be able to get pregnant at all or easily.  I love my husband dearly and he was my best friend before we dated, but that can be hard on a man and I wanted him aware before we said I do. 

8) You know you can borrow my kids anytime right?  Yes and I love all your kiddos dearly, but I'm not trying to play house 48 hours at a time.  I'd still babysit just because in a heart beat though! Auntie Amy's home is always open (well unless I'm working.  Even then Shane might still be willing to try it alone if a mom can be on stand by). 

9) You're so young it can still happen.  A woman at 30 with no health issues working against her has a 10% chance of conceiving in a perfectly timed regular menstrual cycle.  Yes people have babies older than me but whether they tell you or not there's a good chance there was something helping them rather than not.  Again it goes back to that realistic expectation of my situation.  I think people miss signs or just don't read when I share information regarding the specifics and think I've just tried for awhile and think it's not happening.  That is far from the case. 

10) If they are giving you until June to try and make a baby then you surely have to have good chances. Why not try longer?  I honestly think this is a now or never attempt to humor me even though I went in prepared for more surgery and removals and not baby making, but the fact I did well on Lupron took everyone by shock.  Sometimes I feel like it could be research but the fact I'm not being monitored tells me nah.  After 6 months with no hormones or birth control the beast will inevitably be back to take over my body.  It came on so quickly before part of me is terrified to even wait that long.  After then I can do another surgery to check out the insides and maybe talk to an RE about IVF options.  If I chose not to go that route or they say it's unrealistic then I have to come up with a plan to protect my body from the beast for good.  Whether I stay on birth control (and I have issues with IUD's after seeing 3 babies in my small hometown made while on then and put at risk I doubt the 99% effective odds) or do more surgery and maybe more hormones I don't know. I'd like to avoid a hysterectomy as long as possible because I'd just be on hormones anyways from going into menopause that early but we shall see. If it's as bad as it was last May I'll probably just say rip it all out because I can't keep putting my other organs in jeopardy.  Filling toilets with blood when passing bowel movements isn't normal and after 3 years it kind of has become my normal but I'd like to remember life without it and feeling dizzy and nauseated like I could pass out most days.  I want to get out of bed. I want to not take my pain pills for my back for my PMS instead.  I want to be able to know if i walk down the hall, driveway, etc around weeks 2-3 (ovulation is never normal or same days) of my cycle I won't cry out in random stabbing pain and drop down and have it gone before someone can rush to me.  This cycle I literally thought my ovary burst and it happened at work.  It was scary. 

Tuesday, January 29, 2013

Bad things happen.... now get over it!

Yeah that just happened.  Really?  Would you tell someone with cancer that they have to get over it?  Would you tell a paraplegic to get over it? No. You wouldn't because there's this stigma of what defines a chronic medical condition.  Infertility is chronic.  My lining of my utereus is not coming back.  It won't form a new shape.  I can't get pregnant having sex on a perfectly time schedule let alone one drunken time so no I won't get over it.  I'm sorry that you feel the need for me to expect sensitivity from FAMILY and FRIENDS is selfish and I'm raining on your parades.  Heaven forbid I expect simple human characteristics from those who love us right? 

How about shame on you.  I've prayed for you that you wouldn't experience a loss after announcing to EVERYONE so damn early without even knowing if it's still viable.  Babies stop growing pretty often.  You don't have to bleed to miscarry.  No one should have to go through what several women I know and love have experienced even after waiting to announce.  No one. No one should have to experience what I did at your grandfather's funeral and having random horrific cramps out of no where and experiencing what can only be assumed (based on details I won't go graphically into) as a loss before it was confirmed.  What have you done to be there for us???  You ridiculed us at Thanksgiving for shopping because we're trying to save money in every way possible to adopt.  It's all about family?  Why aren't you offering to help us fundraise if you're so family oriented???  Most of all why haven't you just been there for the person who has been like your brother as he has cried several nights and prayed for our situation to be changed? If you can't have a heart or a filter for me do it for him!

Bad things do happen and I'll still pray that they don't happen to you so you never have to feel the way that we do.  But this isn't a bad thing that happened once to me. It's a life altering condition and my situation is so extreme it plays a part in several aspects of my other health issues.  I could bleed out and die silently today and not have a warning sign.  Infertility isn't just about having a baby or not, it's so much more. Perhaps if you went to school or picked up a book to educate yourself you wouldn't have to be schooled by me on your ignorance. Lord knows I've shared plenty of educational sources to make people understand. 

How about you get over my justified hormone induced bad days instead?  Or try to understand.  Oh that's right that's selfish of me to expect it to be a 2 way street. I guess I forgot who the world revolves around.  Actually scratch that.  As you said sometimes we say crude things to beg for sympathy. I don't need anyone's sympathy that can't give it naturally and I sure as hell won't beg for it. Same goes for who we allow in our lives.  I'd rather be alone right now than have to beg people to be around us who can't offer it naturally.  Please don't bother setting us a place at the table!

Tuesday, January 22, 2013

Helping your husband keep the faith...

There are so many message boards and websites for women to overcome facing infertility.  I am sure there are some for men as well, but how do you lead them there?  My husband and I were laying in bed last week and he informed me he read my blog. Okay no big deal it's his blog too or so I assumed.  He says I'm a good writer and he likes that I speak my mind to get the emotions out.  I asked what he thinks I should do different and he joked I need to talk about him more.  Here you go darling! Then he asked me the question that I think has been plaguing him to have so many sleepless nights (and this is a man who needs 9-10 hours or is a beast):

 "How do you stay so strong? More importantly how do you keep your faith in the man above?"

How do you help your husband build back up from the infertile news blow and survive emotionally like we have to?  Out of all the books I've read only one had a single chapter for the husband.  Where do they get their resources???  I had my huge breakdown once I started my Lupron in July and every pregnancy announcement since then.  I always ask him what is on his mind and he just keeps quiet with the usual happy for them, but it sucks kind of comment.  I could however see this moment coming and building up which is why I finally flipped my lid right before Christmas on my mother in law about being a bit more sensitive to him since he won't speak up for himself (or for me which is why I ended up back in our old home before I seriously would have ended up on a psych unit at my breaking point). The great joys of infertility depression is that in several adoption situations you can be denied for anti-depressant use as far back as 10 years.  It baffles me since it's one of the hardest battles as an adult to handle emotionally.  I need my husband to not get taken over by this sudden surge of sadness and especially when others could just be a bit more helpful in that process. 

Anyways we're facing the arrival 5 babies in his family this year.  Not that I mean to sound like an evil in law, there's just none on my side.  Not to mention numerous friends, acquaintances, and those people you see everywhere enough to say hi, but wouldn't know their name if asked.  Needless to say very few (again thank you to those who have) have even taken a moment to be sensitive of our situation and it's starting to impact my hubby's heart and sleep.  He sincerely wanted to know how I can be strong and have faith in the Lord knowing we are good hearted people who would give anything and would be incredible parents and people who aren't even trying or do not want kids are being blessed with a baby. The classic question every infertile person must face!  I told him I haven't always been able to and it's okay to get mad and feel hurt.  I mean I see this every day at work for a living.  You have to have strength to pull yourself up from rock bottom or we'll just stay there.  We just have to trust in the Lord that it will happen for us in one way or another.  I believe with all my heart that the Lord knows we are better equipped to love a child who could not be with a biological parent for whatever reason and more likely to be able to welcome that child into our hearts as our own.  Not everyone can do this.  People say they can and yet I see the dividing lines in my husband's family that I just don't have in mine.  I have never referred to my sisters or brother as halfs unless filling out medical paperwork or trying to explain to someone I just met.  Full blooded or not they are my siblings.  My "step" grandpa is just grandpa.  Same goes for my child which will be a grandchild, niece, nephew, or cousin to others. If everyone had to pay an average of 30k to have fertility assistance or adopt with 6k + due up front to even apply, have multiple references, a home study, financial situation reviewed, etc less people would indeed become parents.  It just means those of us who are willing to go those extra miles are that much more prepared and aware of what we are entering into as parents. We will be great parents and are destined to be and God knows this.  He just wants us to get over this next hump and into that next chapter of life to give us this blessing.  I can feel it.  I told my niece the same thing. Everyday I feel God's warmth and embrace wrapped around me in a hug whether I am actually crying or feel the urge to.  He's listening to all our prayers and trying to tell me to be patient.  It will happen.

"I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world.” John 16:33

I really think we need to find a church to get more involved in when we are moved and it will hopefully help me guide him better through scripture.  I know it's helped me even when I've felt I've been in the darkest moments of all this.  He's lonely. I'm lonely.  He begged me to leave at least the cat up there if I'm bringing my dog home because he just needs that comfort.  We're both just so ready for May and to be in our own home to grieve together more than just on weekends.  I really think we need that as well.  He started this job barely a month after we found out and right before I started my Lupron cycle.  We've not has much time to process together, but rather just alone on our own.  Infertility has so much sadness, madness, and depression to be faced and it's no fun to live out in front of people and feel judged for emotions you have earned the right to feel.  At that point we should know if we have a chance at IVF if we don't have a miracle pregnancy by then.  If neither then we can be in our home finally to do a home study and start the adoption path.  We need to keep each other in emotional check and practice that patience and faith and it will get here before we know it. 

Wednesday, January 16, 2013

The Dirty Thirty: That Just Happened

Oh that wonderful marker in a woman's fertile life.... turning 30.  The statistics sit heavily on the shoulders and no pressure, but you better succeed by 35 or face even more God awful odds against you.  I should probably warn about language now. Sorry they slip and sometimes I just don't care. 

They say 90% of a woman's egg supply is done for by 30.  Lucky for me I'm an egg producing machine. I'm unofficial PCOS because my labs all come back at the borderline of high side of normal.  My mom was the same way though.  My ultrasounds however scream holy egg making machine.  Ironically I should be the generation that twin making skips if you buy into those tales.  Realistically it all comes from your mom or your dad's mom's hyper ovulation genes and which side the twins are on.  My sister was a twin originally.  I have the cutest twin baby cousins ever.  Both sets of my maternal grandparents had twin brothers.  I believe my paternal grandfather did as well.  If only my biological baby making could work we could naturally face twins much more financially secure than going IVF route. 

Okay so off that side tangent that was somewhat related.  Why is there so much stigma around hitting 30 mark and childless?  Is it perhaps from these statistics that make us fear broken ovens (mine has yet to show as repaired, but I'll give you the number to my repair lady if I miraculously get knocked up between now and June) and bad eggs.  We're spoon fed fear that if you don't have a child by 35 you'll probably be facing a Down Syndrome baby amongst other genetic issues.  I have a 5 year old sister and those 1 year old twin cousins born to almost 40 year mothers who are pretty darn bright and perfectly fine minus the temper tantrums, but that comes with the ages. :)  Sure there was a risk, but everything in life comes with a risk. 

I don't think it's the statistics or at least not for myself.  I have always listed failure as one of my top fears when asked in interviews and silly surveys.  You always hoped you'd have all your shit together by 30.  Owning the dream home with a white picket fence, a desk with a shiny name plate across the front that has your name and not followed by assistant, married, still perfect body, and 2 kids running around that fence with a dog.  How many of us actually have that?  We're in a financial crisis in this country and sometimes based on where you live it may not be wise to commit to buying.  Most of my friends who were married in early 20's were divorced and some remarried in late 20's.  We were told we had to get a 4 year degree if we wanted to make 50k and several of us did and were not, and are now in school going for what we figured out we want to do in life instead of feeling compelled to just finish school.  Granted if you asked me at 18 or even 24 if I could be a nurse I'd have laughed in your face.  People change and we find ourselves along the way.  My future neighborhood doesn't allow white fences, there's no private desks at a nurses station, and you'd have to climb the fence for a glimpse of my tiny dog running around in it alone.  Dreams can change and be altered to fit our situations. 

So am I failure for not being a mom by 30??? Absolutely not.  What makes us even consider the notion? I blame those damn little quotes and pictures about stretch marks, pregnancy, and kids.  Sure they are created to make those who have all those feel better and less self conscious.  So are pictures of 6 pack abs and tiny little ladies, but in the end you may still feel like a fat ass sitting behind a computer wanting the body and not sure if you can achieve it even if you lived on water for a month and had time for the gym and plastic surgery like the Real Housewives of (insert city here).  FACT: Every time I see one I cringe.  I thought it was the depression from the hormones, but I realize I did it before and still feel it now.  I've been told that anything I share with crude humor or maybe an F bomb is offensive and that's socially acceptable to most.  Guess what I find these just as offensive and insensitive as well.  Sure I get that it's cute and every pregnant person does it. But let me tell you this because you may not know how it can make a person feel (and I know you've seen the most popular pictures I've picked to know exactly which ones I'm addressing):

1) I have just as much sensitivity and pride behind the scars all over my abdomen from trying to find a way to get pregnant as you do behind your stretch marks from succeeding.  I even have small stretch marks on my thighs it's called I'm getting old and can't eat like I'm 18 anymore.  There's no calling them my tiger stripes and roaring about them.  It doesn't make me any less of a woman because a baby did not cause them. 

2)  The happiest moment in your life very well may be finding out you're pregnant the first time.  It also may not be for some.  Do I think my mom was the happiest in her life finding out at 15 she'd be a mom.  Fuck no.  Seeing my beautiful huge 12 lb face come out? Probably after she recovered from it all ha JK :) Same goes for those sexually assaulted, pregnant after a night they can't remember, or a night they prefer to forget happened etc.  Don't rain on our parades because we can't say that's  happiest moment in our life and make sunshine posters that make us feel inadequate if we can't relate.  No I won't like or share if I agree because I don't. 

3)  People outside of the womb can and should hear how your love feels.  It doesn't have to be heard only from the inside of your body.  You should tell those you love every single day in every single way possible by actions and words.  There are babies who hear heartbeats on the inside while being abused in wombs and treated as disposable.  It sucks, but it happens.  That's why there are people like me who will be there to show them a mother doesn't have to be biological to earn the title.  I will probably plaster my wall with the counter picture that says my baby didn't grow under my heart but in it. Touche!

4) You may be proud that all of your free moments are spent with your kids.  I admit that I would be too!  But I don't have kids yet and if I want to go to a bar, on a vacation, to a concert, shopping, get a pedicure, enjoy a dinner alone with my husband, and cringe at the thought of Jumping Joeys and Chuckie Cheeses worldwide it's my right as someone who doesn't have kids in this moment. It doesn't make me irresponsible or wreckless (love how those words always get thrown out there) same as it doesn't make you more responsible, it just means I don't have kids and have those options babysitter not required.  Even parents need alone time and a night out. And on that note just because we don't have kids don't tell us we're lucky and how it must be nice to get adult time in a sarcastic tone.  It goes straight to an infertile's bones and is always on the lists of what NOT to say. I felt this way before we even started trying!

5) Dear Abby, Laura, Ann or who the eff ever she is these days... yeah you know the picture. It relates to the point above.  The insensitive childless friend who doesn't understand why her friend who is a mother can't understand she's busy or be okay with the kids being around when they get time together.  The columnist rips into her.  Oh it's been flying through my news feed and I've been biting my tongue hard!  Dear columnist and friends who could not have said it better yourself:  Sometimes your kids are a reminder of our pain so we'd prefer alone time with you, especially if it is an infant and we could have suffered a loss. We see your child as the child we could have right now. We value you as a friend and find comfort in you and sometimes need just you to make it better.  Sometimes activities just aren't suited for toddlers.  It's okay.  I don't expect a child to tolerate my white trash bash birthday as easily as I do the Elmo ones because I'm old enough :) And sometimes your kids are just little shits that you don't make mind and I have a right to not want my stuff that I've worked really hard for and earned destroyed in my own home.  I don't expect to bring puppies that chew furniture and aren't house broken into your home for visits and for you to understand because it's the compassionate human thing to do.  If you're constantly asked to leave them at home by multiple people, it's probably not us. It could very well be your child's manners or your inability to notice yet get angry if we speak up for you.  I was raised to not touch my grandma's table full of crystal and guess what it was never broken. 

6) Last but not least the "Just a Mom" pictures.  Most who post them are fantastic stay at home type of moms.  You've earned that pride!  Its the fact I'm suddenly seeing it by what I like to call breeders though.  You know the not so lovely ladies who keep making babies and can't keep custody or just give it away freely.  No you're not just a mom. In fact you're not a mom at all.  I have never given birth in my life and possess more mom qualities and characteristics in my pinky finger than you who chooses to see your child minimal required visits if that.  Dead beat moms are worse than dead beat dads in my opinion because you had that 9 months to fall in love, bond, and feel all those precious moments that you took for granted. I would give anything to feel those kicks and hiccups. ANYTHING!

Wednesday, January 9, 2013

That was quick!

Everything I've read said to expect generally a 3 month wait for Aunt Flo to return after the 6 month dose of Lupron. It took 3 days of being finished with my add back! No idea if this is a good sign or bad, but hoping Mother Nature is trying to give me a stellar gift of hope for my birthday. It came on hardcore and quick and I thought I'd have left working vomitting by now, but I'm okay. Then again the cramping came on so fast I popped muscle relaxer from my back to help work be tolerable. Good thing I ordered mass quantities of ovulation sticks early because I have no idea what to expect at all. I'm dreading facing 2 week waits again. I was comfortable not having that constant judging every moment of your life as a sign and worrying. Knowing it's now or never I fear it'll be even more intense. Sooooo after the dirty thirty hits Saturday I'm cutting my caffeine habit and working on reducing the gluten and red meat. I've woke up every day mid sleep so hot I was nauseated so no temping this cycle for this gal. I think we'll see if I can get regulated better off the hormones first and maybe next cycle pick it back up.

Sunday, January 6, 2013

Last dose of Add Back!


Today is the night I've dreamed of and looked forward to for 6 very long months.  I took my very last add back hormone pill this evening.  My Lupron Depot should be cleared out of my system once and for all and I should go back to "normal" whatever that may be.  I had one period battling insurance before I could get on my hormones after surgery and it was pure hell.  I laid in bed crying and had to order my 10 year old sister pizza from my phone for lunch.  I pray to God I am not that woman for my new normal or I will question if the surgery was even worth it.  Heck I'll probably just go straight into giving into the hysterectomy.  No one should ever have to live in that much pain.  My mom has always said I have the highest pain tolerance possible ever since my back surgery.  I think it's just the fact I hate taking medicines that I deny it.  There was no denying it that first 2 days though.  It makes me wonder if I was worse off than I realized all along and it's almost like now that I'm diagnosed that it makes it okay to recognize the fact it's horrid.  Women will always tell you PMS is painful and awful but how do you really know what is normal when talking about it all is so taboo in society?  That's why I am here open like a book to share my experiences. 

Tuesday, January 1, 2013

Do you believe in signs?

Last year I gave in with some ladies on my chat boards and did a fertility psychic reading.  After a few more pregnancy announcements (including Kim K ugh. Kanye as a dad lord help us! I just feel for Khloe and Lamar)  I decided to do an update reading since my diagnosis obviously changed my predicted date. I mean it's hard to get pregnant when you're not having a cycle!  I didn't give her any dates for what is pending, just told her I am wrapping up a hormone induced menopause.  As you all know we're basically allowed one last try until June (I go back April 2nd for my regular female visit and check up) and then we can meet with a RE to see if he feels anything is possible. Otherwise I go on birth control or hormones to suppress the endo and hope I don't need a hysterectomy asap.  Here is what the psychic sent back. 

Hi Amy,
Your reading reveals that your BFP news comes the month of July from a cycle that begins in June.  The baby shows as a girl and her EDD/birth date is referenced the month of March 2014 - specific reference to the 14th and 21st.
 
Jennifer
 
Ladies on my endo board question even trying for 6 months and say if I'm comfortable to just try IVF asap while I'm still "clean" inside.  I still don't know that I'd even want to try it and risk losing that money.  Thousands of dollars that could be spent bettering the life of an orphan that may or may not even make a baby.  Or couple make multiple when already facing IUGR and from a family of very large babies.  So many risks that weigh heavy on the heart and mind.  This reading though makes me think it's a sign that it's our only shot at biologically ours babies.  But then again the old wives' tale ring test has always given me 2 boys so I guess you just have to decide what signs lead you down the right path and whether or not it's all hocus pocus.  It's still fun to dream though.